What is FA?
Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. Onset of symptoms can vary from childhood to adulthood and can include muscle weakness and loss of coordination in the arms and legs; impairment of vision, hearing and speech; aggressive scoliosis (curvature of the spine); diabetes, and a serious heart condition. The progressive loss of coordination and muscle strength leads to motor incapacity and the full-time use of a wheelchair. Childhood onset of FA is usually between the ages of 5 and 15 and tends to be associated with a more rapid progression. There is currently no cure or treatment.
The Friedreich’s Ataxia Research Alliance (FARA) is a 501©(3), non-profit, charitable organization dedicated to accelerating research leading to treatments and a cure for Friedreich’s Ataxia. http://www.curefa.org